Published 14 December 2019 There is a worldwide development toward using data from hospital‐based stroke registers to estimate epidemiological trends. However, incomplete case ascertainment may cause selection bias. We examined the completeness of case ascertainment and selection bias in two hospital‐based Swedish stroke registers. New publication in Acta Neurologica Scandinavia

https://www.lupop.lu.se/article/completeness-case-ascertainment-swedish-hospital-based-stroke-registers - 2025-04-21

Published 15 December 2019 This is a multicentre, longitudinal, observational cohort study that includes (1) patients with a definite ACM diagnosis, (2) at-risk relatives of ACM patients, and (3) ACM-associated mutation carriers. At baseline and every follow-up visit, a medical history as well information regarding (non-)invasive tests is collected (e. g. electrocardiograms, Holter recordings, ima

https://www.lupop.lu.se/article/netherlands-arrhythmogenic-cardiomyopathy-registry-design-and-status-update - 2025-04-21

Published 15 December 2019 The purpose of the present study was to assess the agreement between self‐reported use of sleep medications and tranquilizers and dispensed hypnotics and anxiolytics. New publication in PDS

https://www.lupop.lu.se/article/agreement-between-self-reported-and-registry-based-use-sleep-medications-and-tranquilizers - 2025-04-21

Published 16 December 2019 The purpose of this paper is to understand what role researchers assign to online representations on the new digital communication sites that have emerged, such as Academia, ResearchGate or Mendeley. How are researchers’ online presentations created, managed, accessed and, more generally, viewed by academic researchers themselves? And how are expectations of the academic

https://www.lupop.lu.se/article/researchers-online-visibility-tensions-visibility-trust-and-reputation-0 - 2025-04-21

Published 16 December 2019 The promise of clinical registries lies in their ability to guide clinical practice with valid, specific, and high-quality information. While registries vary in their design and purpose, most are structured systems that compile organized clinical data for a given disease or groups of diseases. Participating institutions send information on patients to central repositorie

https://www.lupop.lu.se/article/leveraging-full-potential-clinical-registries - 2025-04-21

Published 17 December 2019 Patterns and determinants of long‐term oral corticosteroid (OCS) use in asthma and related morbidity and mortality are not well‐described. In a nationwide asthma cohort in Sweden, we evaluated the patterns and determinants of OCS use and risks of OCS‐related morbidities and mortality. New publication in Allergy

https://www.lupop.lu.se/article/oral-corticosteroid-use-morbidity-and-mortality-asthma-nationwide-prospective-cohort-study-sweden - 2025-04-21

Published 17 December 2019 Over the last several years, there has been increasing awareness around the unique challenges faced by adolescent and young adult (AYA) cancer patients. More cancer centers across the United States are introducing AYA-specific programs to help improve outcomes for these patients. However, given the nature of the United States health care system, there is little ability t

https://www.lupop.lu.se/article/argument-adolescent-and-young-adult-cancer-registry-one-model - 2025-04-21

Published 18 December 2019 Risk factors and consequences of asthma can be studied by using validated questionnaires. The overall objective of this study was to assess the agreement of parental-reported asthma-related questions regarding their children against Swedish health care registers. New publication in Pharmacoepidemiol Drug Saf.

https://www.lupop.lu.se/article/agreement-between-asthma-questionnaire-and-health-care-register-data-0 - 2025-04-21

Published 18 December 2019 New publication in Rev Esp Cardiol

https://www.lupop.lu.se/article/spanish-cardiovascular-imaging-registry-first-official-report-spanish-society-cardiology-working - 2025-04-21

Published 19 December 2019 New publication in Eur Neuropsychopharmacol

https://www.lupop.lu.se/article/need-paediatric-registries-assess-long-term-brain-effects-psychotropic-medications-case-bipolar - 2025-04-21

Published 19 December 2019 High-quality biobanking within routine health services, through the use of existing health-care practices and infrastructure, with respect to safety and integrity of patients in line with the Swedish Biobank Act, enables large-scale collection of biological material at reasonable costs. Complementing the extensive information on myocardial infarction patients from a nati

https://www.lupop.lu.se/article/biobank-linked-swedeheart-quality-registry-routine-blood-sample-collection-opens-new-opportunities - 2025-04-21

Published 20 December 2019 Spatial epidemiological analyses primarily depend on spatially-indexed medical records. Some countries have devised ways of capturing patient-specific spatial details using ZIP codes, postcodes or personal numbers, which are geocoded. However, for most resource-constrained African countries, the absence of a means to capture patient resident location as well as inexisten

https://www.lupop.lu.se/article/establishing-spatially-enabled-health-registry-systems-using-implicit-spatial-data-pools-case-study - 2025-04-21

Published 20 December 2019 In summary, the authors have proposed progressive ideas which could improve surveillance however, in our view, it is likely that many programs will not have the political and medical support needed for implementation with the exception of mortality outcomes. New publication in European Journal of Medical Genetics

https://www.lupop.lu.se/article/triple-surveillance-future-birth-defect-registries - 2025-04-21

Published 21 December 2019 We herein outline the rationale for a Swedish cohort consortium, aiming to facilitate greater use of Swedish cohorts for world-class research. Coordination of all Swedish prospective population-based cohorts in a common infrastructure would enable more precise research findings and facilitate research on rare exposures and outcomes, leading to better utilization of study

https://www.lupop.lu.se/article/rationale-swedish-cohort-consortium-0 - 2025-04-21

Published 21 December 2019 PSYCOHORTS lays the foundation for complex examinations of psychiatric disorders that is based on compatible datasets, use of biobanks and multigenerational approach to risk factors, and extensive data on marginalization and inequality. New publication in Nordic Journal of Psychiatry

https://www.lupop.lu.se/article/finnish-psychiatric-birth-cohort-consortium-psycohorts-content-plans-and-perspectives - 2025-04-21

Published 9 January 2017 Ullrika Sahlin, Researcher at the Centre for Environmental and Climate Research, CEC, has been awarded Richard J. Burk Outstanding Service Award for her work in the field of risk analyses. Ullrika Sahlin, Researcher at the Centre for Environmental and Climate Research, CEC, has been awarded Richard J. Burk Outstanding Service Award for her work in the field of risk analyse

https://www.cec.lu.se/article/researcher-awarded-price-society-risk-analysis - 2025-04-21

Published 18 January 2017 The purpose of Dr. Pejchar's visit is to advance science at the intersection of biodiversity, ecosystem services and agriculture in collaboration with BECC researchers. Dr. Liba Pejchar brings expertise in several emerging topics in BECC at the intersection of biodiversity, ecosystem services and human well-being. Her lively research program explores innovative strategies

https://www.cec.lu.se/article/welcome-becc-guest-researcher-liba-pejchar-associate-professor-department-fish-wildlife-and - 2025-04-21

Published 1 February 2017 • Do you get your Friday emails from Research professional with the latest funding opportunities? • Is your profile in LUCRIS, ORCID-ID and PRISMA in order? • What happens with your articles once they are published? How do you get them in all these databases? Warmly welcome to a workshop on tools for researchers at LU on 9 February 10–12. This event is open to both CEC Fe

https://www.cec.lu.se/article/workshop-tools-researchers-lu - 2025-04-21

Published 3 February 2017 In January 2017, Lund University signed a Memorandum of Understanding with Stockholm Environmental Institute, SEI. The relationship between Lund University and SEI has a long history, covering areas such as climate adaptation and low carbon transitions in Sweden, agriculture and food security, and, most recently, with a common 58 MSEK Mistra Geopolitics programme. Future

https://www.cec.lu.se/article/lund-university-and-sei-sign-mou - 2025-04-21

Published 6 February 2017 Johanna Alkan Olsson from CEC, Lund University was awarded 5,000 Euros for her project on algorithmic potato farming at Climate-KIC Nordic Ideation Day 27 January. The project will create a method for farmers to better handle outbreaks of late blight on crops, a disease expected to become more problematic in a changing climate. This was the second ever Climate-KIC Nordic

https://www.cec.lu.se/article/potato-project-awarded-grant - 2025-04-21